GIVE A LITTLE AND HELP SAVE SOPHIA'S LEG
HELP US REACH OUR GOAL OF
To contribute directly to Sophia's Fund, you can deposit into:
Account: 1043 9227
Please mention 'donation' in the description
Thank you to the generosity of our Silver Sponsors
MMJ NORTH REAL ESTATE
MMJ North is committed to providing you all your Real Estate needs, whether it be Sales, Property Managment or buying a new property.
MMJ North Real Estate Corrimal service the beautiful stretch of the Illawarra coastline and escarpment from Towradgi in the south and north to Stanwell Park. With its beautiful beaches, coastal lifestyle and exquisite selection of property, the team at MMJ North not only work in the area but also chose to call it home, empowering them with outstanding local knowledge.
The team at MMJ North offer sales and property management experts, dedicated to providing clients with personalised customer service and exceptional results.
Thank you to our dedicated sponsors
EVERY LITTLE BIT COUNTS
Please consider placing your spare change in one of donation tins, located in many local businesses around the Wollongong area.
Check out what we have planned. Grab a group of friends and come along for some fun while helping to Save Sophia's Leg.
Sophias Flaschengeist Party
Saturday 9th March 2019
Raffles tickets $5 each
1st prize - Soap and Candle pack
2nd prize - Wine pack
3rd prize - Wine pack
4th prize - Wine pack
Saturday 18th May 2019
7pm to 11pm
City Beach Function Centre
Tickets $150 each and include:
- Peter Teodorescu on keyboard
- 3 course meal and 4 hour drinks package
- Live Entertainment by Cover X
- Luke Hannan MC
- Floor show by Ambitions the Art of Entertainment
- Lucky Door Prize ticket
- Meet and Greet Sophia
- Raffle and auctions
Bellambi Bunnings Sausage Sizzle & Cake Stall
Saturday 27th April 2019
8am to 4pm
Cnr Bellambi & Watts Lane
RAISING AWARENESS OF CONGENITAL FIBULAR HEMIMELIA WHILE HELPING TO SAVE ONE LITTLE GIRLS LIMB
WHO WE ARE
The Save Sophia's Leg Charity Appeal fundraising committee is a group of individuals made up of family members and friends who have come together to fundraise for a charitable cause. We are all working together, collectively, to help parents Christian and Carley give their daughter Sophia Rose Jans every chance at keeping her limb after being born with Fibular Hemimelia. All proceeds from this campaign will be used to fund the second limb lengthening surgery for Sophia at the Paley Institute in July 2019.
WHO IS SOPHIA?
In August 2014, the Jans’ celebrated the birth of the beautiful Sophia Rose. Sophia was born with a very rare limb deficiency called Fibular Hemimelia affecting her right leg and Tallipe (club foot) to her left foot, which was successfully treated shortly after her birth.
Fibula Hemimelia is the malformation or absence of the fibular bone (with a shortened tibia bone) and can also include deformities to the ankle, foot and thigh. There are varying degrees of severity of this condition. In Sophia’s case she has no fibular and her ankle, foot and thigh are also malformed. In Australia at the time of Sophia's diagnosis, the only treatment that had been recommended was amputation of her leg, leading to a life prosthetics and the complications that are associated with this, such as pressure sores to the stump, back pain and potential for body image challenges that Sophia would face as an amputee. Even after amputation the ongoing costs of prosthetic limbs for Sophia would be a financial burden on the family, especially while Sophia grew as a new prosthesis may be required every 6 months.
However, Carley and Christian through researching more about Fibular Hemimelia, found out that Sophia’s leg could be saved.
Dr. Paley, from the Paley Advanced Limb Lengthening Institute in Florida, USA specialises in limb reconstruction. Carley and Christian decided after careful consideration and consultation with the Paley Institute, that they would do everything possible to get Sophia there for limb lengthening surgery.
As a family, the Jans’ have been through more than their fair share of life-altering events. In 2009 Carley and Christian suffered the terrible and unexpected loss of their twins, Jake and Hayden, due to complications caused by Carley contracting Parvovirus during her pregnancy. Carley and Christian were then given the heartbreaking news that any further pregnancy’s would be nearly impossible. Carley told the doctor that her family was not yet to be complete and they tried for a further 4 years to fall pregnant.
In July 2013, 3 weeks after moving into their new family home, the Jans family experienced another tragedy, a house fire. Fortunately all the family members were able to evacuate with no one being injured even though the fire was only metres away from daughter Holly’s bedroom where she was asleep.
Christian had to run back into the house to retrieve Hayden and Jake’s ashes. This house fire took most of their belongings.
The Jans family then faced a battle with their Insurance Company. This resulted in the Jans family paying rent and mortgage payments simultaneously. As a result, Carley was forced to return to work early from maternity leave in order to help keep up the mortgage and rent payments. Their new family home has also been modified for Sophia’s recovery which now includes a heated pool as hydrotherapy will be important in little Sophia’s recovery from her pending the surgery.
Although Sophia is a healthy child, her limb disabilities are just another unlucky sequence of unfortunate events that this family has had to deal with together. But they are a strong family and will do whatever it takes to do the best for Sophia and give her every chance of keeping her leg. Sophia is a beautiful girl who deserves a chance to have full use of both her legs
The Jans family are a very proud and giving family, who are prepared to fight and give everything to Sophia to ensure that the best possible outcome for an able bodied life has been attempted. Both Carley and Christian find it difficult not to try everything medically possible to save her leg.
Friends of the family have rallied together to organise fundraising events such as a gala night and selling chocolates, but fear that this may not be enough.
Please help to share their story and help us to Save Sophia's Leg.
In 2016, Sophia underwent limb lengthening surgery at the Paley Institute in Florida USA.
Now we hope to recommence our fundraising campaign to fund her second surgery in July 2019.
This new campaign ‘The Road to Saving Sophia’s Leg - the next step’ has a goal of $100,000.
Please join us on this journey and support little Sophia by donating to her cause and sharing her story with your friends and family.
A special message from My Tiny Dancer.
Please come to our Gala Night
WIN News report on Sophia's progress, 2nd May 2019.
A CALL TO ACTION
How can you make a difference you ask?
FOLLOW US ON SOCIAL MEDIA
The Save Sophia's Leg Charity Appeal shares updates on Sophia's progress and details of upcoming events. Follow our pages to stay informed and share in milestones throughout this journey.
COME ALONG TO OUR PLANNED EVENTS
Sophia's fundraising committee have planned several events from a Bunnings BBQ and Cake Stall to a Gala Night at the City Beach Function Centre in Wollongong. We are committed to Sophia's cause but also to bringing you great events that are fun, well organised and entertaining. Help us by purchasing tickets to our Gala Night and encouraging friends and family to do so too. Make a night of it and support Sophia along the way.
MAKE A CONTRIBUTION
We can all give a little to help #SaveSophiasLeg. As the saying goes 'Every little bit counts' and that is exactly the mindset we need to help us reach our goal of $100,000.
We would like to challenge everyone to donate $30 by the 30th of June or give up a cup of coffee one morning and donate $5.
DISPLAY COLLECTION TINS
Our committee would like to invite you to consider displaying a Save Sophia's Leg Charity Appeal donation tin in your workplace or place of business. You will be the custodian of this tin and once full, you can arrange for us to collect the tin by getting in touch.
We are in need of locals who walk regularly in all areas of the Greater Illawarra to distribute flyers into letterboxes. If you can help with this please get in touch.